网站综合信息 galactosemia.com
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    • GANES 
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    • 描述:
    • Hello, and welcome to the GANES website! My name is Angie Forsyth, and I am the founder and current  
    • 域名信息
    • 域名年龄:12年13天  注册日期:2012年11月01日  到期时间:2013年11月01日
      注册商:EXTREMELY WILD, INC. 
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    • IP:208.87.35.103 同IP网站3559个 详情
      地址:巴哈马 拿骚市Secure Hosting公司
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    域名注册Whois信息

    galactosemia.com

    域名年龄: 12年13天
    注册时间: 2012-11-01
    到期时间: 2013-11-01
    注 册 商: EXTREMELY WILD, INC.

    获取时间: 2013年10月27日 06:04:33
    Domain Name: GALACTOSEMIA.COM
    Registrar: EXTREMELY WILD, INC.
    Whois Server: whois.extremelywild.com
    Referral URL: http://www.extremelywild.com
    Name Server: BUY.INTERNETTRAFFIC.COM
    Name Server: SELL.INTERNETTRAFFIC.COM
    Status: ok
    Updated Date: 2013-10-25
    Creation Date: 2012-11-01
    Expiration Date: 2013-11-01

    >>> Last update of whois database: Sat, 2013-Oct-26 22:06:06 UTC <<<
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    抓取时间:2013年10月27日 06:04:30
    网址:http://galactosemia.com/
    标题:GANES
    关键字:
    描述:Hello, and welcome to the GANES website! My name is Angie Forsyth, and I am the founder and current president of GANES - the Galactosemia Association of the North ...
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    Hello, and welcome to the GANES website!
    My name is Angie Forsyth, and I am the founder and current president of GANES - the Galactosemia Association of the North Eastern States. I am also the mom of a 6 year old son with classic galactosemia and would like to take this opportunity to tell you about our group! 
    By forming GANES, we are looking forward to being able to serve individuals and families in need, establish a more localized support network, and provide opportunities to become involved in supporting our mission:
    
    ...creating and strengthening opportunities for networking among individuals and families affected by galactosemia and medical providers, and to support education and research related to the study, treatment, management , and a cure of the disease.
    Please take a look through our brand new website courtesy of our volunteers, David Reid and his company NYLI for designing the site Patrick Fernstrom for hosting the site.  See how you can make GANES yours!
    Read the Spring 2007 Update!
    Galactosemia Resources
    PLEASE NOTE: This website is intended to provide general information only. Always seek the advice of your physician or other qualified health professional for medical advice, examination, diagnosis, and treatment.
    Web Design donated by NYLI

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