网站综合信息 nfxf.org
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    • Home - National Fragile X Foundation 
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    • organization foundation menopause shopping syndrome national current c 
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    • 域名年龄:26年5个月21天  注册日期:1998年03月17日  到期时间:
      邮箱:Linda  电话:+1.9259389300
      注册商:eNom, Inc. (R39-LROR) 
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    nfxf.org

    域名年龄: 26年5个月21天
    注册时间: 1998-03-17
    注 册 商: eNom, Inc. (R39-LROR)
    注册邮箱: Linda
    联系电话: +1.9259389300

    获取时间: 2014年04月12日 07:57:45
    Domain Name:NFXF.ORG
    Domain ID: D1432413-LROR
    Creation Date: 1998-03-17T05:00:00Z
    Updated Date: 2014-02-12T17:29:03Z
    Registry Expiry Date: 2015-03-16T05:00:00Z
    Sponsoring Registrar:eNom, Inc. (R39-LROR)
    Sponsoring Registrar IANA ID: 48
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    Domain Status: ok
    Registrant ID:FAST-15325526
    Registrant Name:Linda Sorensen
    Registrant Organization:National Fragile X Foundation
    Registrant Street: 1615 Bonanza Street #202
    Registrant City:Walnut Creek
    Registrant State/Province:California
    Registrant Postal Code:94596
    Registrant Country:US
    Registrant Phone:+1.9259389300
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    Registrant Email:Linda
    Admin ID:FAST-15325526
    Admin Name:Linda Sorensen
    Admin Organization:National Fragile X Foundation
    Admin Street: 1615 Bonanza Street #202
    Admin City:Walnut Creek
    Admin State/Province:California
    Admin Postal Code:94596
    Admin Country:US
    Admin Phone:+1.9259389300
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    Admin Email:Linda
    Tech ID:FAST-12785242
    Tech Name:Bluehost Inc
    Tech Organization:Bluehost.com
    Tech Street: 1958 South 950 East
    Tech City:Provo
    Tech State/Province:Utah
    Tech Postal Code:84606
    Tech Country:US
    Tech Phone:+1.8017659400
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    Tech Fax: +1.8017651992
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    Name Server:NS1.FRAGILEX.ORG
    Name Server:NS2.FRAGILEX.ORG
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    抓取时间:2014年04月07日 04:56:46
    网址:http://nfxf.org/
    标题:Home - National Fragile X Foundation
    关键字:organization,foundation,menopause,shopping,syndrome,national,current,contact,tremors,fragile,events,autism,donate,aging,
    描述:
    主体:
    News
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    Together we can enrich lives, promote awareness and advance research.
    Faces of FX
    Learn of others' experiences within the Fragile X family.
    Connect
    By utilizing the latest digital tools, we're connecting thousands like you.
    Events
    Details coming soon!.
    Move Forward With the National Fragile X Foundation
    The parents, scientists, clinicians and staff associated with the National Fragile X Foundation have been committed since the organization was formed in 1984 to help families, spread awareness, find improved treatments, and support research leading to an eventual cure for all Fragile X-associated Disorders. Please use this website to learn more about Fragile X, and to consider joining our ongoing efforts on behalf of the Fragile X community.
    FXS
    Fragile X Syndrome
    The most common cause of inherited intellectual disability and the most common known genetic cause of autism or autism spectrum disorders. Can cause learning and behavioral challenges ranging from mild to severe.
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    FXTAS
    Fragile X-associated Tremor/Ataxia Syndrome
    An adult-onset condition affecting mostly males that causes tremor and affects balance and memory in some "carriers" of the Fragile X gene. It is often mistaken for Parkinson's, Alzheimer's, and other conditions.
    More
    FXPOI
    Fragile X-associated Primary Ovarian Insufficiency
    A condition of decreased ovarian function that can lead to reduced fertility or infertility, irregular or absent menstrual periods, and early menopause in some female "carriers" of the Fragile X gene.
    More
    Latest News
    Mission to Lars coming to Southern California! October 7th
    Posted on September 27, 2012
    Southeastern PA Fragile X LINKS Group Survey
    Posted on September 26, 2012
    Exciting Media Attention About Fragile X Clinic

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