抓取时间:2019年06月05日 13:07:22
网址:http://ssscf.org/
标题:About | Samira Sanusi Sickle Cell Foundation
关键字:Live., Pray., Hope.
描述:Standing and uniting with the Sickle cell Community. We Live; work towards advocacy, We Pray; & We Hope that one day, We are a Sickle Cell Free Society.
主体:

HomeAbout UsProjects and CampaignsGet InvolvedNewsWhat's New?Meet the TeamContactMore0817 573 4470. 07062219039SAMIRA SANUSI SICKLE CELL FOUNDATIONSupporting our warriors | Standing by our survivors | Honoring our fallen heroesCAC/IT/NO 70049ENENHAIGYOTurning Experience In To ActionSamira Sanusi Sickle Cell Foundation is dedicated to catering to Sickle Cell Disease patients in Nigeria. SSSCFoundation was founded in May 2014 by Samira Haruna Sanusi - a young woman born with Sickle Cell Anaemia. This disease took over most of her childhood and life. At the age of 15, she developed serious health complications due to Sickle Cell Disease which sent her on a 7-year journey to fight for her health, life and the disease that was slowly destroying her body and life. In the middle of this darkness, she found hope - in the form of a Bone Marrow Transplant which is now known to be the only cure for Sickle Cell Disease.
Samira and her sister/Co-Founder had successful Bone Marrow Transplants in Austria (2001 and 2008 respectively) and are now genotype AA and healthier than they have been all their lives.
The foundation is aiming to raise funds for organisations and clinics that provide Sickle Cell patients with care, aid and treatment. The Foundation has also organised awareness programs in several parts of the country to educate and sensitise people as well as create awareness on Sickle Cell Disease itself, how it impacts the lives of sufferers and caregivers alike, its complications, and the importance of genotype testing and compatibility before marriage and its implications on children. It also focuses on creating awareness about the cure for Sickle Cell Disease while attempting to create or find avenues where this revolutionary healthcare and treatment can be brought into our world and finding ways to make it accessible for patients in Nigeria.
The Foundation aims at:
• Our ultimate aim remains Sickle Cell control and eradication for generations to come by
means of education, sensitisation, provision of better health care quality and accessibility and effective control on carrying the sickle cell cycle. Eradication/prevention of this disease remains ‘Genotype Education’ - discouraging genotype carriers of the S gene marrying which may later result in SS gene carrying children, otherwise known as having Sickle Cell Disease.
• Looking for avenues to bridge the gap between our health care systems and that of the experts in Bone Marrow Transplant.
• Basic medications and hospital treatments for underprivileged and destitute patients and to where Primary Healthcare may be otherwise unavailable or unreachable.
• Provide affordable routine check-ups, blood count and health evaluation for patients.
• Encourage patients to become advocates in their schools and communities, creating
awareness and encouraging genotype tests.
• Fundraising to cover the costs of care for patients struggling to meet up with financial
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