网站综合信息 fnrn.org
    • 标题:
    • The Florida Neurofibromatosis Clinical 
    • 关键字:
    • Florida Neurofibromatosis Clinical Research Network NF research con 
    • 描述:
    • Welcome to the Florida Neurofibromatosis Clinical Research Network. You (or your child) are invited  
    • 域名信息
    • 域名年龄:19年1个月29天  注册日期:2005年08月09日  到期时间:2016年08月09日
      邮箱:gowingrp  电话:+1.8133969537
      注册商:GoDaddy.com, LLC (R91-LROR) 
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    • IP:131.247.182.14 同IP网站1个 详情
      地址:美国 佛罗里达州坦帕市南佛罗里达大学
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    fnrn.org

    域名年龄: 19年1个月29天
    注册时间: 2005-08-09
    到期时间: 2016-08-09
    注 册 商: GoDaddy.com, LLC (R91-LROR)
    注册邮箱: gowingrp
    联系电话: +1.8133969537

    获取时间: 2013年08月04日 09:16:56
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    Domain ID:D107123331-LROR
    Domain Name:FNRN.ORG
    Created On:2005-Aug-08 19:56:02 UTC
    Last Updated On:2010-May-26 00:25:32 UTC
    Expiration Date:2016-Aug-08 19:56:02 UTC
    Sponsoring Registrar:GoDaddy.com, LLC (R91-LROR)
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    Registrant ID:CR44632028
    Registrant Name:Rob Gowing
    Registrant Organization:University of South Florida - PEC
    Registrant Street1:3650 Spectrum Blvd
    Registrant Street2:Suite 100
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    Registrant City:Tampa
    Registrant State/Province:Florida
    Registrant Postal Code:33612
    Registrant Country:US
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    Admin ID:CR44632041
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    Admin Organization:University of South Florida - PEC
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    Admin State/Province:Florida
    Admin Postal Code:33612
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    Tech Name:Rob Gowing
    Tech Organization:University of South Florida - PEC
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    Name Server:MOTHER.USF.EDU
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  • 131.247.182.14 共1个网站 (美国 佛罗里达州坦帕市南佛罗里达大学)
  • The Florida Neurofibroma
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    网站首页快照(纯文字版)
    抓取时间:2013年08月04日 09:16:47
    网址:http://fnrn.org/
    标题:The Florida Neurofibromatosis Clinical Research Network (FNC
    关键字:Florida Neurofibromatosis Clinical Research Network, NF, research, contact registry, USF, University of South Florida
    描述:Welcome to the Florida Neurofibromatosis Clinical Research Network. You (or your child) are invited to participate in a research project that will develop a registry for patients with Neurofibromatosi
    主体:
    You (or your child) are invited to join a research project that will develop a registry for patients with Neurofibromatosis 1,
    Neurofibromatosis 2, and Schwannomatosis.  The Contact Registry is
    a research effort that aims
    
    to inform patients and/or parents of patients
    about available
    
    clinical research studies performed for Neurofibromatosis. Joining the Registry will help researchers identify and recruit patients who are eligible for participation in future research studies, including research to find new treatments, better markers of disease, and the cause of these diseases.
    Through Research We Can:
    Make advances in medicine 
    Discover new treatments 
    Prolong healthy life 
    Lessen the burden of illness 
    Find cures
    Volunteers make it possible for researchers to find new treatments, create new studies, and work for the improvement of all our lives. By joining our contact registry, you are contributing not only to our research but to the future of all who have Neurofibromatosis. The continued efforts of researchers may someday save lives and improve the quality of life for individuals with Neurofibromatosis. Their work is one part of this important equation, the other part is you.
    Welcome to the Florida Neurofibromatosis  Research Network (FNRN)! The FNRN is a new resource for Neurofibromatosis (NF) families who are interested in participating in clinical trials and NF research. By taking the time to register, you and/or your family member(s) will have opportunities to enroll in  NF research. The goal of this network is to promote the development of novel NF research and to enhance research outcomes by connecting researchers and families, increasing the number of research participants. Through this site you may find out more about the Florida Neurofibromatosis  Research Network, enroll in the network, and link to web sites where you can learn more about NF.
    University of South Florida

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