抓取时间:2019年06月12日 12:06:56
网址:http://www.chargesyndrome.net/
标题:CHARGE Syndrome Foundation
关键字:
描述:The mission of the CHARGE Syndrome Foundation is to provide support to individuals with CHARGE and their families; to gather, develop, maintain and distribute information about CHARGE syndrome; and to
主体:

DonateeStoreeNewsHomeAbout CHARGEOverview
Signs & Symptoms
Genetics: Diagnosis, Testing & Recurrence
Medical Management
Development & Outlook
Our Role & Impact
About the Foundation
Our Photos
Our Videos
History
Our Stories
Become a Member
For Professionals
Medical Professionals
Psychologists/Behavior Therapists
Education Professional Packet
Educators
Fellowships
Upcoming Events
For Families
New Diagnosis
Get Support
Conferences
Resources
Medical Features
Therapies
Education
Behavior
Communication
Adulthood
Recreation
Advocacy
Research
Foundation Supported Research
Fellowships
Opportunities for Families
News & Reports
Scientific Advisory Board
Clinical Advisory Board
Get Involved
Contact Us
Become a Member
Donate
Fundraising
More Ways to Help
Sign Up for Our eNews
Awareness Items
A better world for people with CHARGE syndrome.
The CHARGE Syndrome Foundation champions the lifelong potential of people with CHARGE syndrome through outreach, education and research.
Jonas’ Cookery School
Jonas has a plan: To get rid of the tracheotomy at 16, to have a beard at 17, to drive a car at 18, and to live alone at 20. His big goal of living alone at the age of 20 gives him all the motivation he needs to learn how to cook. Read his mom’s diary of Jonas’ first cooking lessons.
Read more about Jonas’ Cookery School
Profiles Archive 
Save
Volunteer Spotlight: Meet the State Liaisons
The State Parent Liaisons promote connections among the CHARGE families in their state, share the latest CHARGE resources with the State Deaf-Blind Projects and families, and inform the Foundation about available state resources. If your state is not currently serviced by a parent liaison and you are interested in learning more, please email Minnie Lambert at minnie@chargesyndrome.org.
Read more about the State Liaisons
Spotlight Archive
Save
318 Half Day Rd. #305 · Buffalo Grove, IL 60089 · Office (516) 684-4720 · Toll-Free (800) 442-7604 · Fax (888) 317-4735 · info@chargesyndrome.org© Copyright 2019 CHARGE Syndrome Foundation · Website by Kinetic · Sitemap · State Nonprofit Disclosures
We hope you are enjoying the new website. It is our goal to make navigation and availability of resources as user-friendly as possible. If you need help finding a resource or have a suggestion, please let us know at info@chargesyndrome.org.